What is TCS? - A brief explanation   How does it happen?   Characteristics of TCS
      Web Links - List of many TCS pages on the web including personal pages, technical pages and support groups   Useful Contacts - Addresses, phone numbers of information sources and support groups   Synonyms
      A lesson in genetics   Fear of the Unknown - My own views and experiences   Recent updates to the pages, and what is still to come
      Utilities - Join mailing list, guestbook, email, recommend site TCS Around the World Message board - Share ideas and views with others

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      Web Links

      Juliana Wetmore's web site
      As seen recently on "girl without a face: extraordinary people" Channel Five in the UK

      The Treacher Collins Family Support Group (United Kingdom)
      Brief explanation of the aims of the support group. Contains information abut the syndrome and the genetics. Also has information on Bone Conduction and Bone Anchored hearing aids. Also a couple of links.

      The Treacher Collins Connection (United Kingdom)
      Information about the US based meet ups which started in 2001

      Treacher Collins Foundation (United States and Canada)
      Brief explanation of TCS and information of the foundations services (was known as Treacher Colllins Family Support Network. Serves US and Canada.) This site is part of a much larger site RGDC dedicated to Rare Genetic Diseases in Children

      Treacher Collins Network
      Good list of addresses under "info by mail" link. Other link pages appear to be missing. Has a new message board.

      Treacher Collins Syndrome - A personal web page
      A Personal site by Amie in Texas who has TCS. Well presented and very readable. She also has a great quotes page. Includes pictures!

      Ce Ce's homepage
      Another personal site - by CeCe in California who has TCS. Includes pictures, be sure to check out her Butterfly poem!

      Tony`s Treacher Collins Page
      Another personal site - 1 brief page by Tony in Wales.

      Changing Faces
      a national charity that supports and represents children, adults and families who are living with disfigurements from any cause

      Children's Craniofacial Association
      Not specific to TCS but still relevant. "Dedicated to improving the quality of life for facially disfigured individuals and their families".

      National center for Biotechnology Information
      Very complicated! You can search several databases for info on TCS. I'll add more info on this when I have sussed it out myself!

      NORD(National Organisation for Rare Disorders)-Treacher Collins Syndrome
      This is the TCS page from a much larger site. Gives brief description of TCS and some addresses. You can follow the link to the homepage and search for other diseases.

      Check back here for more links soon!
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