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- Treacher
Collins Syndrome - A personal web page
- A Personal site by Amie in Texas who has TCS. Well presented and very readable.
She also has a great quotes page. Includes pictures!
- Julianna Wetmore’s web site
- As seen in 2005 on "Girl Without a Face: Extraordinary People" Season 3, Episode 3, Channel Five in the UK, and the follow up 13th May 2009, "Extraordinary People: Growing Up Without A Face"
- The Treacher Collins
Family Support Group (United Kingdom)
- Brief explanation of the aims of the support group. Contains information
abut the syndrome and the genetics. Also has information on Bone Conduction
and Bone Anchored hearing aids. Also a couple of links.
- Treacher
Collins Foundation (United States and Canada)
- Brief explanation of TCS and information of the foundations services
(was known as Treacher Colllins Family Support Network. Serves US and Canada.)
This site is part of a much larger site RGDC dedicated to Rare Genetic
Diseases in Children
- FACES: The National Craniofacial Association
- For 42 years, FACES: The National Craniofacial Association has been dedicated to assisting children and adults who have craniofacial disorders resulting from disease, accident, or birth.
- Face The Future
- Founders Alison and Gary Lane set up this charity as a result of losing their youngest son Jake at the age of three. A UK charity, Support for families and holidays by the seaside for families who have children with facial abnormalities.
- Changing Faces
- a national charity that supports and represents children, adults and families who are living
with disfigurements from any cause
- Friendly Faces
- a resource for, and network of, individuals with facial differences, parents, families, friends, and health care professionals
- Children's
Craniofacial Association
- Not specific to TCS but still relevant. "Dedicated to improving the quality of life
for facially disfigured individuals and their families". Contains a very useful guide in PDF FOrmat
- Unique
- Unique is a source of information and support to families and individuals affected by any rare chromosome disorder and to the professionals who work with them. Unique is a UK-based charity but welcomes members worldwide.
- WikiPedia
- National center
for Biotechnology Information
- Very complicated! You can search several databases for info on TCS. I'll add
more info on this when I have sussed it out myself!
- National center
for Biotechnology Information
- Treacher Collins Syndrome on GeneReviews
- NORD(National
Organisation for Rare Disorders)-Treacher Collins Syndrome
- This is the TCS page from a much larger site. Gives brief description of TCS and some addresses. You can follow the link to the homepage and search for other diseases.
http://www.ncbi.nlm.nih.gov/books/NBK1532/
- TV Programmes:
- Katie: My Beautiful Friends Channel 4
- Series 1 Episode 3 will feature Andrew
Shown Tuesday 5th April 2011
- Beauty & the Beast: The Ugly Face of Prejudice Channel 4
- Series 1 Episode 3 featured Andy Tedder (See him on our TCS Around the World Map!)
Shown Wednesday 16th February 2011
Watch on YouTube
- Jono Lanacaster's appearance on This Morning, ITV Watch on YouTube
- Ashley Carter on the Jeremy Kyle Show Watch on YouTube (See him on our TCS Around the World Map!)
- Online News Articles:
- 'Should my hereditary disability stop me having a baby?' 18th April 2011. BBC News Magazine Article Related to the BBC3 program 'So Whatif my Baby is Born Like Me?' shown Tuesday 19th April 2011 9pm.
- 'I hated seeing my face in the mirror' 18th Nov 2010. BBC News Health Article, Interview with Jono Lancaster
- Article17th Nov 2010 About the BBC3 Programe 'Love me, Love my Face', part of the Born Survivors series on BBC Three with Jono Lancaster
- Article About the Channel 5 Programe 13th May 2009, "Extraordinary People: Growing Up Without A Face" about Julianna Wetmore
- BBC Health. Description of Treacher Collins Syndrome
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