Whilst searching on the internet for information about Treacher Collins Syndrome I found very little non-technical / clinical information, and even less information from a personal point of view. Most sites I did find were of support groups and most were in the US. 

When I was born with TCS I expect my parents would have appreciated a little more information and advice. I don't think they got much support at all. In fact I think they were faced with many blank looks from people who weren't quite sure what to make of me!

As I have now started my own homepage I thought I would try to compile some information and gather some links that might be of use to people with TCS or their families. I hope it may also be used as a meeting point for those people (Until very recently I had never spoken to anyone with TCS), and also help those who are lucky enough to live without it understand a little more about it. It is amazing how most people are afraid to ask!

I would appreciate it if you would sign the guestbook, which can be found in the utilities page, especially if you have TCS or have a family member with it. Please give me feedback on where you are from, how (if at all) you are connected with TCS, how useful you found the site and any suggestions for improvements. Also if you have any further information or links which could be added, please let me know. If you have a TCS related site of your own, please join the TCS Web Ring

I have included a "What's New" page for the convenience of frequent visitors.